May 21, 2013
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Rare Diseases: Why Diagnosis Can Be So Difficult

Rare Diseases: Why Diagnosis Can Be So Difficult

Did you know that 1 Canadian in 12 has a rare disease? Thousands of rare or "orphan" conditions exist - some affecting only a handful of people, some with obscure or confounding symptoms, and some for which finding diagnosis and treatment can be a time-consuming challenge.

Rare diseases: why diagnosis can be so difficultRare diseases: why diagnosis can be so difficult

Learn more about the challenges you may face if you suspect that your symptoms could be due to a rare or "orphan" disease. More...

Rare diseases: why it's important to pursue an accurate diagnosisRare diseases: why it's important to pursue an accurate diagnosis

It can take perseverance to acquire a diagnosis for rare diseases. But there are definite benefits to staying the course and being a proactive patient. More...

Rare diseases: how to get started toward diagnosisRare diseases: how to get started toward diagnosis

Getting an accurate, confirmed diagnosis for a rare disease can take time, effort, and patience. Here are a few tips on how to be an informed, assertive, and empowered patient. More...

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