Did you know that 1 Canadian in 12 has a rare disease? Thousands of rare or "orphan" conditions exist - some affecting only a handful of people, some with obscure or confounding symptoms, and some for which finding diagnosis and treatment can be a time-consuming challenge.
Learn more about the challenges you may face if you suspect that your symptoms could be due to a rare or "orphan" disease.
It can take perseverance to acquire a diagnosis for rare diseases. But there are definite benefits to staying the course and being a proactive patient.
Getting an accurate, confirmed diagnosis for a rare disease can take time, effort, and patience. Here are a few tips on how to be an informed, assertive, and empowered patient.